Jacqueline Howard DDS+FollowA Mom’s Fight Against Childhood DementiaImagine thinking your child has autism for years, only to find out it’s actually childhood dementia. That’s what happened to Tammy, whose 5-year-old son Tate was finally diagnosed with Sanfilippo Syndrome after years of questions. The heartbreaking part? There’s no cure, but a new gene therapy in the U.S. could help slow things down. Tammy’s now raising funds to get Tate the treatment he needs and sharing their journey on TikTok. Time is everything for this family. #Health #BodyHealth #ChildhoodDementia20Share
john24+FollowWhat childhood dementia means for familiesImagine being told your energetic three-year-old has dementia—a word most of us link with old age, not childhood. That’s what happened to Sophia Scott’s family in Scotland, and it turned their world upside down. Nearly a decade later, Sophia’s journey is a powerful reminder that rare diseases like childhood dementia can steal away milestones, independence, and even hope, while families scramble for answers and support. Her dad’s fight for recognition and research highlights how much more needs to be done. How would you want the system to support families facing the unimaginable? #Health #BodyHealth #ChildhoodDementia10Share
Jacqueline Howard DDS+FollowChildhood Dementia: A Family’s HeartbreakImagine being told your 4-year-old has childhood dementia and there’s nothing you can do. That’s what happened to Sophia’s family, and it’s honestly devastating. Her parents noticed she was regressing, and after a whirlwind of tests, they got hit with the rare Sanfilippo syndrome diagnosis. Now, they’re fighting for awareness and support—because right now, there’s barely any. They’re holding onto hope, but they need help. Stories like this make you realize how much more research and support is needed for rare diseases. #Health #BodyHealth #ChildhoodDementia30Share
