Imagine being told your energetic three-year-old has dementia—a word most of us link with old age, not childhood. That’s what happened to Sophia Scott’s family in Scotland, and it turned their world upside down. Nearly a decade later, Sophia’s journey is a powerful reminder that rare diseases like childhood dementia can steal away milestones, independence, and even hope, while families scramble for answers and support. Her dad’s fight for recognition and research highlights how much more needs to be done. How would you want the system to support families facing the unimaginable? #Health #BodyHealth #ChildhoodDementia