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Tag Page SMAAwareness

#SMAAwareness
Andrew Hutchinson

St. Jude Doc Makes Time100 for Saving Lives

Did you see this? Dr. Richard Finkel from St. Jude just landed on the Time100 Health list for 2025! He led the world’s first prenatal treatment for spinal muscular atrophy (SMA), giving hope to families everywhere. The baby he treated before birth is now almost 3 and totally symptom-free. This is next-level medical history and a huge win for kids with rare diseases. Talk about changing the game! #Time100 #StJude #MedicalBreakthrough #PediatricNeurology #SMAAwareness

St. Jude Doc Makes Time100 for Saving Lives
Aaron Rodriguez

SMA Treatments Help Keep Hands Moving

Just learned that Spinraza and Evrysdi can actually help kids and young adults with SMA type 2 keep their upper limb strength for longer! The study found that without treatment, arm function peaks around age 4 and then drops off, but with these meds, the decline is way slower. Earlier treatment might mean even better results. For anyone with SMA or caring for someone who is, this could be a game-changer for independence and daily life! #SMAAwareness #Spinraza #Evrysdi #RareDisease #MedicalBreakthrough #Health

SMA Treatments Help Keep Hands Moving