Children diagnosed with Pompe disease in Durham used to face heartbreaking odds, but thanks to Duke University’s pioneering research, they’re now living into adulthood. Haley Hayes, once given little chance to survive past infancy, just celebrated her 20th birthday—a milestone once thought impossible. The game-changer? Enzyme replacement therapy, developed and tested right here at Duke, is now helping kids grow up, go to college, and dream about their futures. Haley’s journey shows how far medicine has come, but also reminds us there’s still work to do for rare disease communities. What does this mean for families facing tough diagnoses today? #Health #BodyHealth #Durham